The auction night appeared to bring people together, some who wouldn’t be talking were and conversations happened; I like to think that through the awareness and money for the charity that I have helped that water flow under the bridge or at least been the strange glue I’ve been this past year.
A total will be to follow. I don’t know what I will be doing now I haven’t got anything like that to focus on and that’s probably a good thing…the abseil and twilight walk is out of my hands, as is the skydive, so it’s kinda fitting.
Tablets are the same; steroids have been leaving marks for the past 6 months or so but Dr Spooner thinks they are ok so he’s bumped those up to 8mg a morning and the monthly chemo are still there, but everything else has stayed as it is.
Symptoms are getting worse, most noteably in the right leg…it’s working on about 45% of what it should be, if that, I can barely walk unless I’m familiar or have support I fall, so I’m limiting the amount I do.
It’s been noticed by Dr Spooner that I’m getting worse, which is a good thing, most consultants would glaze over it. He’s sending out a chase for the scan, a dermatologist for my feet and legs and a pallative nurse to see how I am. Whether this happens is another thing, but it looks like something happens. They have shaved 3 months off lift off, so he has reluctantly said Christmas time….I hope it’s a bit of way off that time of year as so many have so much going on, but I can’t help it and I won’t be here to find out……