I’m keeping flowers in full bloom….

It’s a Monday that they have their neurosurgeon meeting to discuss all the different cases that need a little more talking about than normal, so next week, they should be bringing up my situation and why the symptoms are worse yet the scans showed no growth at all.

They are still treating Clive as a grade 4 glioma, which I wasn’t expecting them to do any different as they have been doing it for the past 8 months.

I finally asked. The expectancy of life from grade 4’s is about 18 months from diagnosation. As in theory I’ve already had 8 months of limbo so far, there’s less than a year left for me to keep going; if it’s being taken as to the letter, we could be looking at March, but it would be good to at least get to May…round figures and all that.

Part of me looks around and wonders why, part of me laughs and part of me cries, but it’s a nice feeling to know that I have a ballpark timespan rather than the constant guessing I’ve had.


Some answers

A much shorter appointment with Dr Spooner today, there’s not a lot he could add, so made sense. Pretty much a making sure I was alive, no reactions and a little chat.

The tightness and slight discomfort in my stomach questions were, as predicted, nothing, but at least he’s aware should it do anything really drastic.

I couldn’t help but ask about the type and grade of Clive, it’s my head after all! It is a glioma and currently they are classing it as a grade 4. Yeah, the highest grade.Whoop. He did say that that’s what they are doing for now, and I have no idea if they downgrade this kinda thing at different points.

In a nutshell, I’m non the wiser as to how long there is.